Now don't get me wrong. I always have and always will be involved in spreading the awareness of Muscular Dystrophy (MD) and the Muscular Dystrophy Association (MDA). People need to understand what the disease is all about, and realize that it takes the lives of many people every year. Also, I will continue to help with the funding of research to ultimately cure MD and it's accompanied diseases. This life comes with challenges that I would want future generations to not necessarily have to learn to adapt to or overcome.
But with that being said, having Spinal Muscular Atrophy, a type of MD, has made me who I am, and I'm for the better because of it. It's because of it and the "challenges" I face that I don't sweat the small shit. I'm not religious, but I know every second is a blessing because I've seen way too many awesome people lose their lives at the hand of MD, and therefore I live everyday like it's my last. It's also the reason behind my resiliency, being able to problem solve because of some of my limitations, and, according to medical research, I probably have a higher IQ because of it. Not walking also comes with advantages like reduced prices, great seating at events, shoes that stay perfect forever, and some other things I'll brag about later. :)
So like I've already said, I love me. I don't want anyones pity. I'll take the credit people give me for simply doing regular shit that they somehow view as courageous because of my "situation," but I could care less. This is the life I was given, and I embrace every single piece of it, good or bad. Should I not? Cripple please! I'll tell you like I tell everyone else...Walking is overrated!